Publication
Food-related quality of life in inflammatory bowel disease: translation and validation of food-related quality of life to the portuguese language (FR-QoL-29-Portuguese)
| dc.contributor.author | Oliveira, Raquel | |
| dc.contributor.author | Martins, Viviana Maria Varajão | |
| dc.contributor.author | Teixeira, Laetitia | |
| dc.contributor.author | Sousa, Helena Tavares | |
| dc.contributor.author | Roseira, Joana | |
| dc.date.accessioned | 2024-07-31T12:37:47Z | |
| dc.date.available | 2024-07-31T12:37:47Z | |
| dc.date.issued | 2024-06-06 | |
| dc.description.abstract | Food-related quality of life (FR-QoL) has been shown to be an important patient-reported outcome in inflammatory bowel disease (IBD). We aimed to translate and validate a Portuguese version of the FR-QoL-29. Methods: This was a case-control cross-sectional study undertaken at a tertiary hospital. After obtaining the original authors' authorization, both forward and backward translations of the original FR-QoL-29 were performed by bilingual researchers. After an IBD expert's revision and the input of a small group of patients, a final version was obtained. Portuguese IBD patients were prospectively recruited from the outpatient clinic of a tertiary hospital and completed the questionnaire at two timepoints (0 and 4 weeks). Reliability (internal consistency, test-retest, and intraclass correlation [ICC]), validity (content and convergent validity, and hypothesis testing using Spearman's correlations), and responsiveness (Student t tests) were analysed. Results: 239 patients (mean age 50.1 [SD = 15.3 years], 56.5% female) and 87 (36.4%) patients answered the questionnaire at the first and second timepoints, respectively; 126 controls answered the questionnaire. Overall, the FR-QoL-29-Portuguese showed excellent internal consistency (Cronbach's alpha = 0.97) and good test-retest reliability (ICC = 0.78 [95% CI: 0.64-0.85]). FR-QoL moderately correlated with health-related quality of life, measured by the SIBDQ-PT (R = 0.49; p < 0.05). Lastly, the questionnaire revealed appropriate responsiveness when patients reported an overall improvement in general well-being (mean improvement 25.88 [SD = 32.50]; p < 0.05). Discussion/Conclusions: We present an adaptation and validation of the FR-QoL-29 tool for Portuguese IBD patients. The FR-QoL-29-Portuguese is a reliable and valid tool shown to be responsive to changes in general well-being. | eng |
| dc.identifier.doi | 10.1159/000539227 | |
| dc.identifier.issn | 2341-4545 | |
| dc.identifier.uri | http://hdl.handle.net/10400.1/25757 | |
| dc.language.iso | eng | |
| dc.peerreviewed | yes | |
| dc.publisher | Karger AG | |
| dc.relation.ispartof | GE - Portuguese Journal of Gastroenterology | |
| dc.rights.uri | http://creativecommons.org/licenses/by-nc/4.0/ | |
| dc.subject | Translation | |
| dc.subject | Validation | |
| dc.subject | Nutrition | |
| dc.subject | Inflammatory bowel disease | |
| dc.subject | Patient-reported outcomes | |
| dc.title | Food-related quality of life in inflammatory bowel disease: translation and validation of food-related quality of life to the portuguese language (FR-QoL-29-Portuguese) | eng |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.citation.title | Ge Portuguese Journal of Gastroenterology | |
| oaire.version | http://purl.org/coar/version/c_970fb48d4fbd8a85 | |
| person.familyName | Martins | |
| person.familyName | Sousa | |
| person.familyName | Roseira | |
| person.givenName | Viviana Maria Varajão | |
| person.givenName | Helena Tavares | |
| person.givenName | Joana | |
| person.identifier.ciencia-id | 2C1A-9EB3-E825 | |
| person.identifier.ciencia-id | CF1F-1163-1C4A | |
| person.identifier.orcid | 0000-0001-9218-6524 | |
| person.identifier.orcid | 0000-0002-6626-205X | |
| person.identifier.orcid | 0000-0002-5098-8729 | |
| person.identifier.scopus-author-id | 55485732800 | |
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| relation.isAuthorOfPublication.latestForDiscovery | 6b1d11dd-486f-4fb3-b41f-02e1cf6a5c2e |