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Publication
A perturbação do espectro do autismo: contribuições para o estudo da sobrecarga, ansiedade, depressão, stresse, qualidade de vida e resiliência nas famílias
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Abstract(s)
O nascimento de um filho é algo maravilhoso, mas que
pode trazer grandes
dúvidas e inseguranças. Quando um filho apresenta uma perturbação como a
Perturbação do Espectro do Autismo ( essas dúvidas e inseguranças são
acres cidas de uma grande carga emocional que, muitas vezes pode levar a que as
famílias entrem em rutura. Assim, a sobrecarga familiar e a sintomatologia
depressiva são em numeroso s casos uma presença constante na vida destas
famílias. Alguns estudos re velam c ontudo que algumas famílias conseguem
reorganizar se e lidar adaptativamente com as dificuldades provenientes desta
situação utilizando estratégias que lhes permit em ser mais resilientes.
O
objetivo d este estudo consiste em analisar a dinâmica d as famíl ias com
filhos com PEA explorando as relações entre a sobrecarga, indicadores de saúde
mental (ansiedade, stresse e depressão) depressão), qualidade de vida ( e resiliência, e
comparando as com pais de crianças com um desenvolvimento normativo.
Para
tal utilizou se um q uestionário sociodemográfico, a Escala de Desgaste do
Cuidador Familiar (EDC F ), a Escala de Ansiedade, Depressão e Stresse (EADS), a
EUROHIS QOL 8 e a Family Resilience Assessment Scale ( numa amostra
constituída por pais e principais cuidador es de crianças entre os 4 e os 16 anos com PEA
n 49) e com desenvolvimento normativo ( n 76
Os resultados desta investigação demonstra
m que os pais de crianças com
PEA apresentaram níveis mais elevados de sobrecarga e sintomatologia depressiva
e qu e os pais de crianças com desenvolvimento norma tivo apresentaram níveis
mais elevados de crescimento pessoal resiliência familiar e uma melhor QdV
As
variáveis que predizem u ma maior sobrecarga no s pais de crianças com
PEA são o stresse, a ansiedade e a d epressão , destaca ndo se ao nível da
so brecarga nas relações uma correlação negativa moderada muito significativa
com a QdV e uma correlação negativa forte muito significativa com a resiliê ncia na
dimensão d as ligações familiares
The birth of a child is a wonderful thing, but it also usually brings great doubts and insecurities. When a child experiences a disorder such Autism Sp ectrum Disorder (ASD) ASD), these doubts and ins ecurities are added to a great emotional burden that can often lead to families breaking down . Family overload and depressive symptomatology are in many cases a constant presence in the lives of these families. Ho wever, some studies show that some famili es are able to reorganize themselves and cope with the difficulties arising from this situation by using strategies that allow them to be more resilien t The aim of the present study is to analyze the dynamics of fa milies with children with ASD by explorin g the relationships between different study variables compared to parents of children with normative development. For this research o were used a sociodemographic questionnaire, the Revised Burden Measure (EDCF), th e Depression Anxiety Stress Scale s ( EADS), the EUROHIS QOL 8 and the Family Resilience Assessment Scale (FRAS) in a sample of parents and main caregivers of children between 4 and 16 years old with ASD n = 49) and with normative development n = The results of this investigation demonstrate that parents of children with ASD had higher levels of burden and depressive symptoms and parents of children with normative development had higher levels of personal growth, family resilience, and better QoL. The variables that predict greater overload in parents of children with ASD are stress, anxiety and depression, with a very significant moderate negative correlation with QoL and a very significant strong negative correlation with resilience in the dimension of family connections.
The birth of a child is a wonderful thing, but it also usually brings great doubts and insecurities. When a child experiences a disorder such Autism Sp ectrum Disorder (ASD) ASD), these doubts and ins ecurities are added to a great emotional burden that can often lead to families breaking down . Family overload and depressive symptomatology are in many cases a constant presence in the lives of these families. Ho wever, some studies show that some famili es are able to reorganize themselves and cope with the difficulties arising from this situation by using strategies that allow them to be more resilien t The aim of the present study is to analyze the dynamics of fa milies with children with ASD by explorin g the relationships between different study variables compared to parents of children with normative development. For this research o were used a sociodemographic questionnaire, the Revised Burden Measure (EDCF), th e Depression Anxiety Stress Scale s ( EADS), the EUROHIS QOL 8 and the Family Resilience Assessment Scale (FRAS) in a sample of parents and main caregivers of children between 4 and 16 years old with ASD n = 49) and with normative development n = The results of this investigation demonstrate that parents of children with ASD had higher levels of burden and depressive symptoms and parents of children with normative development had higher levels of personal growth, family resilience, and better QoL. The variables that predict greater overload in parents of children with ASD are stress, anxiety and depression, with a very significant moderate negative correlation with QoL and a very significant strong negative correlation with resilience in the dimension of family connections.
Description
Keywords
Sobrecarga Saúde mental Qualidade de vida Resiliência familiar Perturbação do espectro do autismo