Repository logo
 
Publication

Usage and impact of patient‐reported outcomes in epilepsy

2023Journal article Open access
Simple item page
dc.contributor.authorVonck, Kristl
dc.contributor.authorBiraben, Arnaud
dc.contributor.authorBosak, Magdalena
dc.contributor.authorJennum, Poul Jørgen
dc.contributor.authorKimiskidis, Vasilios K.
dc.contributor.authorMarusic, Petr
dc.contributor.authorMitchell, James W.
dc.contributor.authorFerreira, Lara
dc.contributor.authorOndrušová, Martina
dc.contributor.authorPana, Adrian
dc.contributor.authorPersson, Ulf
dc.contributor.authorvon Oertzen, Tim J.
dc.contributor.authorLattanzi, Simona
dc.date.accessioned2024-01-04T09:41:14Z
dc.date.available2024-01-04T09:41:14Z
dc.date.issued2023
dc.description.abstractBackground: The use of patient-reported outcomes (PRO) in clinical practice is gaining increasing attention. This study aimed to provide a critical assessment of the current state-of-the-art and beliefs about the use of PRO in the management of people with epilepsy across some European countries. Methods Structured interviews were conducted with European experts to collect insights about (I) the personal experience with PRO; (II) the value and impact of PRO in the decision-making process at the national level; and (III) the interest for and use of PRO by national health authorities. Results Nine neurologists (Austria, Belgium, Czechia, Denmark, France, Greece, Italy, Poland, and United Kingdom), three health economists (Portugal, Romania, and Sweden), and one epidemiologist (Slovakia) participated. They all stated that PRO are collected at their own countries in the context of clinical trials and/or specific projects. During everyday clinical practice, PRO are collected routinely/almost routinely in Austria and Sweden and only at the discretion of the treating physicians in Czechia, Denmark, France, Greece, and Portugal. There was complete consensus about the favorable impact that the PRO can have in terms of clinical outcomes, healthcare resources utilization, and general patient satisfaction. Only participants from Portugal and Sweden answered that the PRO are perceived as very important by the National Health Authorities of their respective countries. Conclusions Differences exist in attitudes and perspectives about PRO in epilepsy across Europe. An active plan is warranted to harmonize the measurement of PRO and ensure they can be relevant to people with epilepsy and health services.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.1002/brb3.3342pt_PT
dc.identifier.issn2162-3279
dc.identifier.urihttp://hdl.handle.net/10400.1/20261
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherWileypt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectEconomicspt_PT
dc.subjectEpilepsypt_PT
dc.subjectPatient-reportedoutcomespt_PT
dc.subjectSeizurept_PT
dc.titleUsage and impact of patient‐reported outcomes in epilepsypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue12pt_PT
oaire.citation.titleBrain and Behaviorpt_PT
oaire.citation.volume13pt_PT
person.familyNameFerreira
person.givenNameLara
person.identifier.ciencia-id761A-3037-8E22
person.identifier.orcid0000-0003-2378-7750
person.identifier.ridB-7575-2019
person.identifier.scopus-author-id24491766400
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicatione93501ac-9707-4e92-bb2c-cc91bc09b428
relation.isAuthorOfPublication.latestForDiscoverye93501ac-9707-4e92-bb2c-cc91bc09b428

Files

Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
Brain and Behavior - 2023 - Vonck - Usage and impact of patient‐reported outcomes in epilepsy.pdf
Size:
192.91 KB
Format:
Adobe Portable Document Format
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
3.46 KB
Format:
Item-specific license agreed upon to submission
Description:
Download

Collections

CNT2-Artigos (em revistas ou actas indexadas)
ESG2-Artigos (em revistas ou actas indexadas)