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Publication
Caminhos da Legg-Calvé-Perthes- Estudo de caso
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Authors
Advisor(s)
Abstract(s)
Pretende-se, nesta investigação, trazer um contributo ao estudo da doença de
Legg-Calvé-Perthes e da realidade vivida pelos doentes (crianças) e famílias desta
recente, desconhecida e controversa doença.
A doença de Legg-Calvé-Perthes foi descoberta com o advento do raio-x há cerca
de 100 anos, em 1910, quando três autores distintos em diferentes partes do mundo sem
qualquer comunicação entre eles, descobrem as mesmas anomalias no desenvolvimento
da cabeça do fémur e os três efetuam simultaneamente estudos em que chegam a
conclusões muito parecidas quanto à descrição da doença. As questões em que diferem
mantêm-se em discussão até hoje: a sua etiologia; Legg (EUA) defendia que a doença
tinha origem em traumatismos; Calvé (França) defendia que tinha por base uma anomalia
ou mutação genética; Perthes (Alemanha) acreditava que esta era uma doença associada
a condições inflamatórias (Legg-Calvé-Perthes Foudation, 2018).
Apesar de, nos anos subsequentes, serem realizados diversos estudos na área da
medicina e da enfermagem, estudos histológicos, fisiopatológicos e radiográficos, de
forma a expandir o conhecimento, a origem da doença permanece desconhecida, levanta
ainda muitas dúvidas e constitui um tema controverso, quer dentro da ortopedia quer entre
cuidadores.
Apesar da investigação e do gradual interesse da comunidade científica, nenhum
dos estudos ou investigações incide sobre as famílias, pacientes, sobre a área social ou
política na área da saúde.
Hoje, a estes doentes e famílias inseridas em contexto macro de saúde, educação
ou apoios sociais, são impostas obrigações que implicam um equilíbrio entre a gestão da
doença e o contexto político e espácio-temporal em que estão inseridos.
This research aims to contribute to the study of Legg-Calvé-Perthes disease and specifically the reality of the patients (children) and families who are affected by this recent, unknown and controversial disease. Legg-Calvé-Perthes disease was discovered with the advent of the x-ray in 1910 when three distinct authors in different parts of the world without any communication discovered the same abnormalities and specifically the development of the femoral head. Following the initial observations, the three researches simultaneously carried out studies in which they discovered very similar conclusions regarding the description of the disease. Issues in which they differ are still under discussion: their etiology; Legg (USA) proposed that the disease originated in trauma; Calvé (France) claimed that it was based on an anomaly or genetic mutation; Perthes (Germany) believed that this was a disease associated with inflammatory conditions (Legg-Calvé-Perthes Foundation, 2018). Even though several studies in the area of medicine and nursing, histological, pathophysiological and radiographic studies have followed to expand knowledge, the origin of the disease remains unknown, raising many doubts and is a controversial subject both within the orthopedics and within caregivers. Research and interest from the scientific community have increased but until now no studies or investigations has focused on the families, patients or on the social area or health politics. Today these patients and families are inserted in the macro context of health, education or social support that results in the creation of a set of obligations split between the management of the disease and the political-spatial-temporal context in which they are inserted.
This research aims to contribute to the study of Legg-Calvé-Perthes disease and specifically the reality of the patients (children) and families who are affected by this recent, unknown and controversial disease. Legg-Calvé-Perthes disease was discovered with the advent of the x-ray in 1910 when three distinct authors in different parts of the world without any communication discovered the same abnormalities and specifically the development of the femoral head. Following the initial observations, the three researches simultaneously carried out studies in which they discovered very similar conclusions regarding the description of the disease. Issues in which they differ are still under discussion: their etiology; Legg (USA) proposed that the disease originated in trauma; Calvé (France) claimed that it was based on an anomaly or genetic mutation; Perthes (Germany) believed that this was a disease associated with inflammatory conditions (Legg-Calvé-Perthes Foundation, 2018). Even though several studies in the area of medicine and nursing, histological, pathophysiological and radiographic studies have followed to expand knowledge, the origin of the disease remains unknown, raising many doubts and is a controversial subject both within the orthopedics and within caregivers. Research and interest from the scientific community have increased but until now no studies or investigations has focused on the families, patients or on the social area or health politics. Today these patients and families are inserted in the macro context of health, education or social support that results in the creation of a set of obligations split between the management of the disease and the political-spatial-temporal context in which they are inserted.
Description
Keywords
Legg-Calvé-Perthes Cuidadores informais Saúde Serviço Nacional de Saúde Educação